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YOUR STORIES
Do you have a story to be told?
If you or a family member have personal experience of living with a facial difference, we would love to hear your story. Find out more.
Megan
"Most importantly, I like the person that lives inside my face."
Megan was born with Treacher Collins Syndrome where the facial bones and tissues are underdeveloped,
Patrick
"Being a father means protecting your family and being Superman, or at least that’s what I thought until the spring of 2011."
Patrick's son Jack was born with Crouzon Syndrome, the premature closing of the skull sutures and underdeveloped mid-face region.
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