YOUR STORIES

Do you have a story to be told?

 

If you or a family member have personal experience of living with a facial difference, we would love to hear your story. Find out more.

Megan

Megan's story

"Most importantly, I like the person that lives inside my face."

Megan was born with Treacher Collins Syndrome where the facial bones and tissues are underdeveloped,

Patrick

A father's story

"Being a father means protecting your family and being Superman, or at least that’s what I thought until the spring of 2011."

Patrick's son Jack was born with Crouzon Syndrome, the premature closing of the skull sutures and underdeveloped mid-face region.

FACES: The National Craniofacial Association