Other Organizations

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Other organizations and resources in the United States and around the world that support craniofacial differences from birth, accident, or disease.


Please contact us if your organization would like to be added to this list.

Mercy Ships (Hospital Ships)  - www.mercyships.org
Projet Harar - www.projectharar.org
Smile Foundation - smilefoundationsa.org
Winning Smiles Ethiopia - winningsmiles.org


Face Up!  - www.faceup.org.au

VAGA - Association for Congenital Facial Disorders - www.vaga.be

AboutFace - www.aboutface.ca
BC Professional Fire Fighters’ Burn Fund - burnfund.org
Canadian Burns Survivors Community - www.canadianburnsurvivors.ca
Mamingway Burn Survivor Society - www.burnfundmb.ca/mamingwey
Transforming Faces - transformingfaces.org

Czech Republic
Be TCS - www.betcs.cz

European Cleft Organisation - europeancleft.org
Eurordis Rare Diseases Europe - www.eurordis.org

Emergenzi Sorrisi - www.emergenzasorrisi.it

Astitwa Nepal (Burn & Acid Burn) - astitwanepal.org.np

Stichting Eigen Gezicht - eigengezicht.nl

Aproquen - aproquen.org/en

South Korea
Hallym Burn Foundation - www.hallymburnfund.org:444


Asociación de Microsomía Hemifacial (Hemifacial Microsomia Association) - www.microsomiahemifacial.org

Hautstigma - www.hautstigma.ch

Noordhoff Craniofacial Foundation - www.nncf.org/en
Sunshine Welfare Foundation - www.sunshine.org.tw/english

Yuzumle Mutulyum Dernegi (Happy Faces) - yuzumlemutluyum.org.tr

United Kingdom
Birthmark Support Group - www.birthmarksupportgroup.org.uk
Changing Faces - www.changingfaces.org.uk
Cleft Lip and Palate Association (CLAPA) - www.clapa.com
Dan’s Fund for Burns - www.dansfundforburns.org
Facial Palsy UK - www.facialpalsy.org.uk
Future Faces - www.futurefaces.org.uk
Headlines Craniofacial Support - www.headlines.org.uk
Microtia UK - www.microtiauk.org
Nerve Tumours - nervetumours.org.uk

United States
ACPA Family Services - cleftline.org

American Speech-Language-Hearing Association - www.asha.org

Ameriface - www.ameriface.org
Angel Faces - www.angelfaces.com

International Anaplastology Association - www.anaplastology.org

Apert Owl - www.apertowl.org
Born a Hero - Research Foundation - www.bornahero.org

Burn Survivors of New England - bsone.org
CCD Smiles - ccdsmiles.org

Center for Parent Information & Resources - www.parentcenterhub.org
Children's Craniofacial Association -

Cleft Advocate - www.cleftadvocate.org
Cleftopedia.com - www.cleftopedia.com

Cranio Care Bears - craniocarebears.org
Craniosynostosis and Positional Plagiocephaly Support - www.cappskids.org

Custom Prosthetic Designs - www.prosthesis.com
Ear Community - earcommunity.org

Exceptional Parent Magazine - www.ep-magazine.com

Eye Cancer Network - www.eyecancercure.com
Faces of Children - facesofchildren.org
Face 2 Face Healing - face2facehealing.org
FACES Camp - facescamp.org

Face The Future Foundation - www.facethefuturefoundation.org

Facing Forward - www.facingforwardinc.org
HNC Living Foundation - www.hncliving.org
Hydrocephalus Association - www.hydroassoc.org

Lymphangiomatosis & Gorham Disease Alliance - www.lgdalliance.org

Many Faces of Moebius Syndrome - manyfacesofmoebiussyndrome.org

MedlinePlus - Facial Injuries - medlineplus.gov/facialinjuriesanddisorders.html

Moebius Syndrome Foundation - moebiussyndrome.org
myFace - www.myface.org

National Rosacea Society - www.rosacea.org

NewMouth - www.newmouth.com

Philly Phaces - www.phillyphaces.org
Phoenix Society for Burn Survivors - www.phoenix-society.org

PROS Foundation - prosfoundation.org

Stickler Involved People - stickler.org
Smile Train - www.smiletrain.org
The Sturge-Weber Foundation - sturge-weber.org
The Vascular Birthmarks Foundation - birthmark.org
WonderFIL Smiles - a Facial Infiltrating Lipomatosis community - wonderfilsmiles.com


CenterWatch (clinical trials)  - www.centerwatch.com

Connect Med International - connectmed.org
EURORDIS - www.eurordis.org

Face Equality International - faceequalityinternational.org
International Anaplastology Association  - www.anaplastology.org

ReSurge International - www.resurge.org

World Craniofacial Foundation - worldcf.org

FACES: The National Craniofacial Association