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Other Organizations

Other organizations and resources in the United States and around the world that support craniofacial differences from birth, accident, or disease.

Please contact us if your organization would like to be added to this list.

Africa
Mercy Ships (Hospital Ships) - www.mercyships.org
Projet Harar - www.projectharar.org
Smile Foundation - smilefoundationsa.org
Winning Smiles Ethiopia - winningsmiles.org

Australia
Face Up! - www.faceup.org.au

Belgium
VAGA - Association for Congenital Facial Disorders - www.vaga.be

Canada
AboutFace - www.aboutface.ca
BC Professional Fire Fighters’ Burn Fund - burnfund.org
Canadian Burns Survivors Community - www.canadianburnsurvivors.ca
Mamingway Burn Survivor Society - www.burnfundmb.ca/mamingwey
Transforming Faces - transformingfaces.org

Czech Republic
Be TCS - www.betcs.cz

Europe
European Cleft Organisation - europeancleft.org
Eurordis Rare Diseases Europe - www.eurordis.org

Italy
Emergenzi Sorrisi - www.emergenzasorrisi.it

Nepal
Astitwa Nepal (Burn & Acid Burn) - astitwanepal.org.np

Netherlands
Stichting Eigen Gezicht - eigengezicht.nl

Nicaragua
Aproquen - aproquen.org/en

South Korea
Hallym Burn Foundation - www.hallymburnfund.org:444

Spain
Asociación de Microsomía Hemifacial (Hemifacial Microsomia Association) - www.microsomiahemifacial.org

Switzerland
Hautstigma - www.hautstigma.ch

Taiwan
Noordhoff Craniofacial Foundation - www.nncf.org/en
Sunshine Welfare Foundation - www.sunshine.org.tw/english

Turkey
Yuzumle Mutulyum Dernegi (Happy Faces) - yuzumlemutluyum.org.tr

United Kingdom
Birthmark Support Group - www.birthmarksupportgroup.org.uk
Changing Faces - www.changingfaces.org.uk
Cleft Lip and Palate Association (CLAPA) - www.clapa.com
Dan’s Fund for Burns - www.dansfundforburns.org
Facial Palsy UK - www.facialpalsy.org.uk
Future Faces - www.futurefaces.org.uk
Headlines Craniofacial Support - www.headlines.org.uk
Microtia UK - www.microtiauk.org
Nerve Tumours - nervetumours.org.uk

United States
ACPA Family Services - cleftline.org
American Speech-Language-Hearing Association - www.asha.org

International Anaplastology Association - www.anaplastology.org

Apert Owl - www.apertowl.org
Born a Hero - Research Foundation - www.bornahero.org

Burn Survivors of New England - bsone.org
CCD Smiles - ccdsmiles.org

CdLS Foundation (Cornelia de Lange syndrome) - www.cdlsusa.org

Center for Parent Information & Resources - www.parentcenterhub.org
Children's Craniofacial Association - ccakids.org

Cranio Care Bears - craniocarebears.org
Craniosynostosis and Positional Plagiocephaly Support - www.cappskids.org

Custom Prosthetic Designs - www.prosthesis.com
Ear Community - earcommunity.org
Exceptional Parent Magazine - www.ep-magazine.com

Eye Cancer Network - www.eyecancercure.com
Faces of Children - facesofchildren.org
Face 2 Face Healing - face2facehealing.org
FACES Camp - facescamp.org
Face The Future Foundation - www.facethefuturefoundation.org

Facing Forward - www.facingforwardinc.org
HNC Living Foundation - www.hncliving.org
Hydrocephalus Association - www.hydroassoc.org

Lymphangiomatosis & Gorham Disease Alliance - www.lgdalliance.org

Many Faces of Moebius Syndrome - manyfacesofmoebiussyndrome.org

Moebius Syndrome Foundation - moebiussyndrome.org
myFace - www.myface.org

National Rosacea Society - www.rosacea.org

Philly Phaces - www.phillyphaces.org
Phoenix Society for Burn Survivors - www.phoenix-society.org
PROS Foundation - prosfoundation.org

Stickler Involved People - stickler.org
Smile Train - www.smiletrain.org
The Sturge-Weber Foundation - sturge-weber.org
The Vascular Birthmarks Foundation - birthmark.org
WonderFIL Smiles - a Facial Infiltrating Lipomatosis community - wonderfilsmiles.com

INTERNATIONAL

CenterWatch (clinical trials) - www.centerwatch.com

Connect Med International - connectmed.org
EURORDIS - www.eurordis.org

Face Equality International - faceequalityinternational.org
International Anaplastology Association - www.anaplastology.org

ReSurge International - www.resurge.org

World Craniofacial Foundation - worldcf.org