As a parent, I vividly recall the questions that filled my mind when Kiall was born – Will he be okay? What should I do? What does this mean for his future?
Kiall was born with Apert Syndrome, the premature closing of the skull sutures, underdeveloped mid-face region, large forehead, webbed fingers and toes.
Mary & Wesley
"...Gwen and Paul weren’t aware they were having twins until 37 weeks pregnant — much less, twins with a complex medical journey called Pfeiffer syndrome.”
Mary and Wesley were born with Pfeiffer syndrome, (Premature closing of the skull sutures, underdeveloped mid-face region, bulging, wide-set eyes)
"There aren’t enough ‘Thank yous’ in the world that I could give to FACES and those who work there... You have been our light in some stressful times!"
Zane was born with Apert Syndrome, the premature closing of the skull sutures, underdeveloped mid-face region, large forehead, webbed fingers and toes.
"To be honest, when Elena was born, we never could have foreseen the brilliance that has greeted us in her team of doctors, nor the kindness of people we don’t even know helping us with all the expenses we’d never imagined."
Elena was born with Goldenhar Syndrome, abnormalities to one side of the face that affect the eye, jaw, and ear.
"FACES has been with our family every long car ride...up early in the morning, car loaded, Lemuel and Bronwyn in PJs, and leaving our small town to drive 12 hours to meet with a craniofacial team."
Lemuel was born with Treacher Collins Syndrome, underdevelopment of the eye sockets, cheek bones, lower jaw and ears.
"I was 21 weeks pregnant when I had the ultrasound that showed my little girl had a cleft lip and possibly a cleft palate. My husband insisted that I terminate the pregnancy, and when I refused, he left us."
Cammi was born with Cleft Lip & Palate, the incomplete closure of the lip and palate.