Research Sources

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Disease Map
Wold maps of chronic and rare diseases and other syndromes and conditions. Connect with people who share your condition and help each other.
Website: www.diseasemaps.org


Genetics Home Reference
A guide to understanding genetic conditions. Please remember to look at the dates of the research and pay the closest attention to the more recent findings.
Website: ghr.nlm.nih.gov

National Institute of Dental and Craniofacial Research
The mission of the National Institute of Dental and Craniofacial Research (NIDCR) is to improve dental, oral, and craniofacial health.
Website: www.nidcr.nih.gov

OMIM
OMIM is a comprehensive, authoritative compendium of human genes and genetic phenotypes that is freely available and updated daily. OMIM is authored and edited at the McKusick-Nathans Institute of Genetic Medicine, Johns Hopkins University School of Medicine, under the direction of Dr. Ada Hamosh.
Website: www.ncbi.nlm.nih.gov/omim

PubMed
PubMed comprises more than 24 million citations for biomedical literature from MEDLINE, life science journals, and online books. Citations may include links to full-text content from PubMed Central and publisher web sites. Remember to look at the dates of the research and pay the closest attention to the more recent findings.
Website: pubmed.ncbi.nlm.nih.gov


Remember to look at the dates of the research
and pay the closest attention to the more recent findings.

 


Office of Rare Diseases
The Genetic and Rare Diseases Information Center
Excellent web site for finding information on a variety of craniofacial disorders, particularly very rare ones. Information specialists are available to answer your questions. Telephone operation is Monday - Friday, 12 pm to 6 pm Eastern Time. Email or fax requests for information will be answered within 5 -10 working days. U.S. Mail requests will be answered within 5-10 working days. NOTE: The center does not give medical advice, provide treatment, or diagnose illness.
Phone: (888) 205-2311
Email: gardinfo@nih.gov
Website: rarediseases.info.nih.gov

The Smile Train Online Medical Cleft Library

This excellent new resource has instant access to full transcripts of numerous articles and studies related to every major cleft issue. Great resource for both patients and professionals.

Website: www.smiletrain.org/cleft-resources/best-practice-resources

FACES: The National Craniofacial Association

FACES: The National Craniofacial Association

P.O. Box 11082 | Chattanooga, TN 37401 | USA

(800) 332-2373

FACES is a member organization of America's Best Charities
FACES is a member organization of GuideStar Exchange
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Faces: The National Craniofacial Association is a 501©(3) nonprofit organization incorporated under the laws of the State of Tennessee.

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