Children with Facial Difference:
A Parent's Guide
Written by Hope Charkins, MSW. Excellent resource for parents to help them cope with medical, emotional, social, educational, legal, and financial challenges presented by facial differences of their children. Order from Amazon.com if you cannot find it in your local bookstore.
A Face for Me
In the late 1960's, FACES: The National Craniofacial Association began as the Debbie Fox Foundation. Debbie, a young girl from Soddy Daisy, TN, was born in 1955 with a facial cleft.
Click here for Free download.
A Story of Heart and Bones,
By Jeanne McDermott, the mom of a son born with Apert Syndrome. This book highlights the first two years of Nate's life, and expresses the thoughts and feelings that are a part of the journey of having a child who is born with a rare disorder. This is a book you will want to share with your friends and family members. The book can be found at Amazon.com.
Written by Steve Doherty, the father of a child named Maggie, who was born with Apert Syndrome. Maggie takes the reader on the adventure of having a child born with Apert Syndrome with all of its ups, downs, trials, and triumphs. A true love story.
A Guide to Hemangiomas and Vascular Malformation
Written by Linda Shannon, MS, and Connie Marshall, RN, MSN, with Milton Waner, MD.This 171-page paperback includes the latest treatments, support information, and before and after photos for anyone dealing with facial birthmarks. Excellent resource!
Available at: www.amazon.com
Facial Disfigurement and My Fight for Face Equality
An honest memoir of the battle after severe facial burns; it’s a practical self-help guide for anyone with a facial difference and a manual for health professionals trying to help them. And, finally, it’s a manifesto for face equality, rooting out the stigmas of face-ism that oppress us all… and urging new face values in our 21st century world.
Keep Your Chin Up
Everything You Never Knew You'd Need To Know About Pierre-Robin Sequence
Written by Jessica Carey
So you've been told that your new baby has a medical condition called Pierre-Robin Sequence. OK. I know you’re scared right now, because I’ve been there. Finding helpful information online was almost impossible, which only made it scarier. That’s I why I wrote this book.
Available here: Keep Your Chin Up
The Cleft Palate Story
Written by Samuel Berkowitz, DDS, MS, FICD.
Surgical procedures performed from birth to adolescence are treated in depth; helps parents to understand options and what to expect; appendices on financial assistance, agencies, support groups, and a glossary of terms.
We are working on adding a lot more books.
The Courage to Be Kind
Created by Jenny Levin and Rena Rosen
In The Courage to Be Kind, authors Jenny Levin and Rena Rosen teach children and parents how to act and respond when they see someone who looks different.
Beauty with a Twist: A Girl’s journey to Hope, Healing & Restoration
Written by Rasheera Dopson
A book that can be used to teach your children about inclusion, diversity, and interacting with individuals who are different from them.
Available at: www.beautywithatwist.org/online-store